graphic - health care for all california
Home Page

Dio Gregory

(continued from home page)

when she came here in 1994. It covered emergencies only and lasted for 18 months. Since then, until June of 2006, she had no insurance at all.
 
“I always felt very insecure, that I had no backup, no way of getting care. To an extent I was just in denial about how serious my problems were. My hip is the worst thing, but who knows what state my heart’s in. I’m overweight, and I’ve got some high blood pressure. When I finally got to see a doctor, it had been so long since I’d seen anyone that I only had time to go through a couple of the things on the list.”
 
Dio works as a certified home-health aide for elderly people. Like so many people, she makes too much money to qualify for MediCal, but not enough to afford health insurance. Finally, this spring, she discovered MRMIP, California’s program for people who have been rejected for coverage by an insurance company. MRMIP is subsidized with funds from the tobacco tax and offers several plans. Dio qualified and chose Kaiser, the cheapest option offered; she now pays $600 a month. She has co-pays, including $200 a day for hospital care, and an annual maximum spending allowance of $75,000. Three years is the maximum anyone can be on MRMIP, which doesn’t bother Dio as in three years she will qualify for Medicare.    
 
Dio was born in Germany during World War II to a malnourished Irish mother and developed rickets due to lack of vitamins and sunlight. Bronchitis has been a lifelong problem. Because of the rickets, she grew up with a malformed pelvis, has had back problems since her mid-twenties, and had to have a Caesarean when her son was born. Then she started getting osteoarthritis in her mid-thirties and had more and more pain.
“This hip thing has been getting singularly worse over time. It affects everything because I lean to one side, and that side gets much too much work. When you have this absence of bilateral symmetry, your muscles can’t work properly. Six or seven years ago I started using a cane to take the weight off the painful hip. I was told I needed a hip replacement then, but there was no way I could afford it. I was just in a total economic bind.
 
I was lucky that seven years ago I found a wonderful doctor through the old gentleman I was looking after. He saw me for the minimum that he could, $40 to $80 a visit, so I had some management for my bronchitis and pain medication for my arthritic hip – without that, I just couldn’t have been able to work at all. When he gave me prescriptions, I would order the medications from Canada so that I could afford them. He was a great doctor. I’d feel better just talking to him. But I couldn’t afford to have an operation.
 
“Not having health insurance all these years has caused a huge amount of stress; I think that has been the worst thing – the fear factor of wondering what could happen. Mostly I’d just try to ignore my problems. I did do some research about getting an operation more cheaply by going to another country, such as Belgium or Sri Lanka or India, but that costs too. Finally, my son and my landlady said, “You just can’t go on like this,” and that’s when I really did the research and got MRMIP.
 
“MRMIP requires a three-month waiting period after approval before you can get any care. When the time was up, I was able to see a Kaiser internist who referred me to an orthopedist.  I had an X-ray immediately. You know how the technicians aren’t supposed to say anything, but mine came back in the room and said something like, ‘Honey, that is one messed-up hip.’
 
“The British system isn’t perfect. The doctors there were very paternalistic, though I think it’s changed since I left.  But the level of care that I got was pretty good, and the hospitals were wonderful. And I never had to worry about whether I could go to a doctor. I felt cared for, I felt safe. I thought highly of the system.
 
“I’m grateful to have insurance now, but I’m left with very little money. I just pay for my rent, MRMIP, food and gasoline. If my car gives out, I’ll be in a very bad way. If I had had insurance sooner, my hip never would have gotten into such awful shape; it would not have become so damaged and the surgery I’ll have would not have had to be so drastic. 

“Over the last ten years, I have allowed my life to become more and more curtailed because of not being able to afford to attend to my health problems. I used a crutch instead of having a hip replacement. That means only being able to use one arm for most things. It’s a huge limitation. I can’t walk much, and I don’t participate in as many things as I would like to. Even getting in and out of cars is hard. My life has become smaller and smaller, more and more confined. I can’t work in my garden nearly as much as I would like to. I always have to consider the difficulties of going anywhere, the accessibility of wherever I want to go. So I read a lot.

“If I had had health insurance all along, I would have been able to earn more, and my health expenses would have been cheaper overall.”

 

Alicia

(continued from home page)

insurance companies, and now that I need something back, it is one brick wall after another.

[Alicia generously shares her story here, but asks that we not use her last name.]

Health Care for All is not just about providing for the uninsured; it is also about protecting people who are supposed to be insured and are nonetheless denied the care they need. It’s about allowing doctors who have actually examined a patient to make decisions about their care. It’s about cutting through layers of company bureaucracy that make government administrators look like rank amateurs.

Recently, I have been through a nightmare encompassing all of the above.

Last July, my husband became very ill. After 11 days in the hospital, he was sent home with a walker and a wheelchair.

For a while it looked as though he was improving. I continued to work at my job in advertising sales, not only for the income but to keep insurance. I would prepare food and put all his necessities where they would be handy before leaving for the day. We paid for a rolling walker with a basket to give him more independence. Our health coverage did not include in-home care, so we did the best we could.  

Then his condition worsened, and it became impossible for him to stand or move himself from chair to bed. I tried numerous ways to get help for at least part of the day. As much as friends might want to assist, there is only so much time they can give, and as his health deteriorated, we had to pay for professional help.

This was extremely expensive, but I could not give up my job and lose our insurance. I began to dip into our retirement savings and made plans to sell my car. We could still only afford part-time help. The rest was up to me.

I had suffered a severe back injury years before, and many things I was doing were damaging to my back. At the same time my arthritis was progressing rapidly. But what choice did I have? There was a lot of lifting -- not the least of which was getting the wheelchair into the car trunk for doctor visits. There was little sleep. Needless to say, there was no time to see to my own health.

In January, I lost my husband. He was my best friend and love of my life.

I tried very hard to go on and pull myself together, but finally, the physical and emotional pain proved to be too much and on the advice of my doctor, I applied for temporary disability. Not surprisingly, I was terminated the next day. I immediately filled out forms and remitted payment for my first month of COBRA coverage.  

COBRA was enacted to allow an insured worker to buy up to 18 months of paid coverage when leaving a job. I needed to sign up, because even missing a short period of coverage can make someone uninsurable, and I had immediate health-care needs. At $447 a month, COBRA was still far cheaper than anything else I could get; what’s more it is unlikely that I could get individual insurance at any price due to pre-existing conditions. So I was grateful to have this option.

I discovered that I now had three layers of bureaucracy to deal with: There was the COBRA administrator, Ceridian (the 1st layer) – which I credit for doing its job promptly and reporting payment and eligibility to my insurer, Cigna Health Care (the 2nd layer). In most cases, Cigna does not pay directly but contracts with Sutter Gould (the 3rd layer

I needed to see a rheumatologist, but my primary-care doctor was required to get permission for the referral from Sutter Gould, where it is up to a clerk to decide whether I can see a rheumatologist, which rheumatologist I can see, and what he or she can discuss with me and treat me for.   

My doctor’s office started the procedure to get the referral from Sutter Gould. Lo and behold, Cigna told Sutter Gould I was not covered. I called Cigna and was told that they had no record that I had paid for COBRA. I called Ceridian, which assured me that indeed that information had been sent.

I called Cigna back. The representative had no knowledge of COBRA, and I spent an interminable amount of time trying to explain it; finally the rep agreed to call Ceridian and got confirmation that I had indeed paid my premium. She then informed me that they still needed that information in electronic form before they could enter it into the system. I called Ceridian again. Ceridian assured me that the information had been sent electronically and that they would send an urgent request to Cigna to please make sure it was uploaded into their system.

I called my doctor’s office and assured them the problem had been resolved.

The doctor’s assistant called Sutter Gould. Sutter Gould called Cigna. Sorry, no coverage! And the cycle started again.

This went on daily for most of a month. I have 17 documented calls to Cigna. Ceridian made 3 urgent requests. After the seventeenth call to Cigna, I went on line and found the name of the CEO and the home-office address and phone number in Philadelphia.

I spoke to the CEO’s assistant and was put through to a customer advocate. No one during all my calling had ever allowed me to talk to a supervisor, much less informed me about such an advocate. This wonderful woman went to work for me and got the problem resolved. She called me back the same day to tell me the problem had been with their system and it would now be corrected immediately! It was. I finally was allowed to speak directly to someone at Sutter Gould and tried to tell her that they could go through with the referral. No, said the rep. They had already tried three times in the past. Why wouldn’t I just accept the fact that I had no coverage?

Fortunately, the Cigna advocate took it from there. After 31 days, my doctor’s office was able to start the referral process. A few days later I received written permission to make an appointment.

At last, I called the rheumatologist’s office to make my appointment, but no, they said, I could not make my own appointment. The appointment must be made by my primary care physician’s office. So I called my doctor’s office once more, leaving a message that they had to make the appointment. My doctor’s assistant called me back promptly with the time and date and informed me that I could make changes directly if needed.

Unfortunately, the first available appointment was three months hence. I still have three weeks to go before I will see this doctor. In the meantime the problem has worsened considerably.

I sure hope it’s worth it once I finally get there.